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Monday, 26 November 2012

Patient research call



The RNIB is calling for patients with cataracts or wet AMD and their carers to take part in two research projects which aim to identify what needs to be actioned to improve access to sight-saving treatments. 
For the first study, the charity is seeking 100 people with AMD and 100 carers, while the second project requires 100 patients with cataract. 
 
Those interested in taking part in either study must have been diagnosed and treated for either condition within the last three years. It can include both those who are currently being treated and those who have completed treatment. 
 
Clara Eaglen, eye health policy and campaigns manager for the RNIB, said: “The aim of the research is to examine the impact of restrictions on access to treatments and talk to eye health specialists about how services are delivered.
 
“But most importantly, the research will ask patients about the impact that these conditions – and waiting for their treatment – has on their quality of life. We want to hear from people who have good, or bad experience, of NHS treatment and care.”
 
Participants will be interviewed over the telephone by researchers.
 
Reports on each project are expected to be published in spring and will arm the charity with essential information when campaigning for PCTs to change their policies and improve access to treatments for both conditions. 
 
Ms Eaglen added: “As part of the RNIB’s Save our Sight campaign, we are fighting for the rights of people with sight loss and for better access to sight-saving treatments on the NHS. 
 
“The research will help us increase the public profile of the issues in the treatment of these conditions, increase political pressure on PCTs to remove cataract restrictions and improve the treatment outcomes and service delivery for wet AMD patients.”